Every year, the Race for Matt and Grace at Rhode Island College raises hundreds of thousands of dollars to support the Friedreich's Ataxia Research Alliance.

A story chronicling Colleen O'Neal's battle with Friedreich's ataxia, an incurable disease of the nervous system, generated an overwhelming response from readers. The seventh-grader at Northern Middle ...

Patients with Friedreich's Ataxia have called for change following their successful campaign for the HSE to fund the drug Skyclarys, saying that other rare disease patients should not have to "beg" ...

Please provide your email address to receive an email when new articles are posted on . Approximately 5,000 people in the United States have Friedreich’s ataxia. Advocates virtually met with ...

Rare diseases affect an estimated 30 million people in the US. Even after a proper diagnosis treatment often is unavailable which is why raising awareness is so important. Raena Brendtro is one of ...

Sarah Officer, 41, said the approval process is "taking too long" and that her son Jake is "not the kid he used to be" as his incurable condition progresses ...

Friedreich's Ataxia doesn’t wait, Craig Coady says, as he details the harrowing reality his family faces as they desperately wait for life-changing drug, Skyclarys, to be approved for use in Ireland.

Dublin, Nov. 19, 2025 (GLOBE NEWSWIRE) -- The "Friedreich's Ataxia Market - A Global and Regional Analysis: Focus on Country and Region - Analysis and Forecast, 2025-2035" report has been added to ...

A University of Oklahoma researcher is the first to discover that the sequence of the genetic defect in the neuromuscular disease Friedreich's ataxia isn't always as uniform as previously thought, a ...