The realization that they were not alone set the tone for MDA Engage: Chicago, a free symposium held Sept. 26 in suburban ...

Kelsey Saxon shares how she went from surviving to healing after her son received gene therapy for Duchenne muscular ...

New treatments for muscular dystrophy are moving forward, but some promising therapies have fallen short in trials, two ...

Elliott Johnson, a podcaster living with Duchenne, along with his able-bodied cohost, advocates across a wider community.

It’s been a big week for the Vertin Party of 9. We moved into our new home, and after only a week, the blessings seem boundless. I’m so thankful to share this because, as you can imagine, moving a ...

Rather than giving up something he enjoys, columnist Shalom Lim has learned how to adapt to change in the way he accesses ...

In the past six months, FSHD has destroyed the muscles in columnist Robin Stemple's arms and hands, and now he fears he can't play piano.

Neuromuscular disease patients and families should help shape drug development from the start, per a panel discussion at MDA Engage.

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit My name is Cody Chalfan. I’m 26, from Columbus, Ohio, and I live with Duchenne muscular dystrophy ...