The realization that they were not alone set the tone for MDA Engage: Chicago, a free symposium held Sept. 26 in suburban ...
It’s been a big week for the Vertin Party of 9. We moved into our new home, and after only a week, the blessings seem boundless. I’m so thankful to share this because, as you can imagine, moving a ...
New treatments for muscular dystrophy are moving forward, but some promising therapies have fallen short in trials, two ...
In the past six months, FSHD has destroyed the muscles in columnist Robin Stemple's arms and hands, and now he fears he can't play piano.
People living with neuromuscular diseases and their families should help shape new treatments from the very start, rather than weighing in only after key decisions are made, according to experts and ...
Kelsey Saxon shares how she went from surviving to healing after her son received gene therapy for Duchenne muscular ...
Columnist Betty Vertin pays tribute to her 11-year-old daughter, Mary, who is wise beyond her years and always steps in to help.
Elliott Johnson, a podcaster living with Duchenne, along with his able-bodied cohost, advocates across a wider community.
In recognition of Muscular Dystrophy Awareness Month in September, the Muscular Dystrophy Awareness Month campaign features a ...