The FDA has given the go-ahead for a trial testing an oral therapy that aims to aid muscle regeneration in adults with FSHD, ...

Managing my condition is a full-time job. Muscular dystrophy (MD) has woven its way into more than just my muscles. It takes a mental toll as time goes by. The hours tick away. The cells tick away. I ...

The realization that they were not alone set the tone for MDA Engage: Chicago, a free symposium held Sept. 26 in suburban ...

Kelsey Saxon shares how she went from surviving to healing after her son received gene therapy for Duchenne muscular ...

Elliott Johnson, a podcaster living with Duchenne, along with his able-bodied cohost, advocates across a wider community.

New treatments for muscular dystrophy are moving forward, but some promising therapies have fallen short in trials, two ...

In the past six months, FSHD has destroyed the muscles in columnist Robin Stemple's arms and hands, and now he fears he can't play piano.

People living with neuromuscular diseases and their families should help shape new treatments from the very start, rather than weighing in only after key decisions are made, according to experts and ...

It’s been a big week for the Vertin Party of 9. We moved into our new home, and after only a week, the blessings seem boundless. I’m so thankful to share this because, as you can imagine, moving a ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit My name is Cody Chalfan. I’m 26, from Columbus, Ohio, and I live with Duchenne muscular dystrophy ...