The realization that they were not alone set the tone for MDA Engage: Chicago, a free symposium held Sept. 26 in suburban ...

It’s been a big week for the Vertin Party of 9. We moved into our new home, and after only a week, the blessings seem boundless. I’m so thankful to share this because, as you can imagine, moving a ...

New treatments for muscular dystrophy are moving forward, but some promising therapies have fallen short in trials, two ...

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In the past six months, FSHD has destroyed the muscles in columnist Robin Stemple's arms and hands, and now he fears he can't play piano.

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit My name is Jake Levin. I am 23 years old, and I live with Duchenne muscular dystrophy. I graduated ...

People living with neuromuscular diseases and their families should help shape new treatments from the very start, rather than weighing in only after key decisions are made, according to experts and ...

Kelsey Saxon shares how she went from surviving to healing after her son received gene therapy for Duchenne muscular ...

Before my appointments at the National University Hospital in Singapore today, I still reflect on the years when my parents answered almost every question the doctor asked. It made sense. I was ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit My name is Cody Chalfan. I’m 26, from Columbus, Ohio, and I live with Duchenne muscular dystrophy ...